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Review Article| Volume 120, P12-22, February 2019

The social construction of dementia: Systematic review and metacognitive model of enculturation

      Highlights

      • Stigma is influenced by the way dementia has been represented through history.
      • The concepts of dementia are interpreted, assimilated or rejected by individuals.
      • Through enculturation the views on dementia are transmitted through generation.

      Abstract

      Background

      The stigma associated with dementia may be influenced by how the condition has been socially constructed throughout history.

      Objectives

      To conduct a systematic review tracing the historical representations of dementia, from the perspectives of cultural transmission theory and social constructivism.

      Methods

      A systematic search was run on five electronic databases: Wellcome Library, PsycINFO, CINAHL, IBSS, and EMBASE. Articles were screened and analysed through deductive content analysis. We further applied a communication system theory to graphically describe how dementia has been experienced through time.

      Results

      Ten primary sources and 33 secondary sources were consulted. Seven themes emerged from the analysis: a problem of aging; use it or lose it; divine punishment; loss of agency; psychosis and insanity; brain degeneration and objectification; and dementia as a social condition. Each theme corresponds to a particular way of conceptualising dementia and has influenced modern representations of the condition.

      Conclusion

      Past characterisations of dementia have influenced modern views of the condition. It is through enculturation that these views are interpreted, assimilated, or rejected by individuals and transmitted within and across cultures. A better understanding of the social construction of dementia can improve public health approaches to rehabilitation and care.

      Keywords

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